What organizations help with Marfan syndrome?
The Marfan Foundation is a voluntary, non-profit organization dedicated to the support and education of people affected by Marfan syndrome and related connective tissue disorders.
What race is most affected by Marfan syndrome?
Marfan syndrome affects men and women equally and occurs among all races and ethnic groups. Because it’s a genetic condition, the greatest risk factor for Marfan syndrome is having a parent with the disorder.
Can a person with Marfan syndrome have kids?
If one parent has Marfan syndrome, there’s a 1-in-2 chance (50 percent) that their baby will have it, too. Only babies who get the gene change have Marfan syndrome. If you or a family member has Marfan syndrome, talk to a genetic counselor to learn more about the chances of your baby having it.
Does Marfan syndrome get worse with age?
Marfan syndrome can be mild to severe, and may become worse with age, depending on which area is affected and to what degree. In Marfan syndrome, the heart is often affected. The aorta, the major artery of the body, may be more dilated (widened) than average.
Does Marfan syndrome affect intelligence?
Marfan syndrome does not affect intelligence.
Can you get disability for Marfan?
People who have Marfan syndrome are not able to qualify for SSDI benefits under an Social Security Administration (SSA) listing. However, this does not mean that these individuals will be denied benefits. If complications of the condition are severe, these complications can qualify a person for benefits.
Is there a cure coming soon for Marfan syndrome?
While there is no cure for Marfan syndrome, treatment focuses on preventing the various complications of the disease. To accomplish this, you’ll need to be checked regularly for signs that the damage caused by the disease is progressing.
Are there different degrees of Marfan syndrome?
The symptoms of Marfan syndrome differ from one person to the next, depending on which body part is affected and to what degree. Some people may not even realise they have the condition, because their features are either mild or not obvious.